Rare Zebra

Rare disease search prototype built on Orphanet data

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ORPHA:79277

Congenital erythropoietic porphyria

Also called CEP, Günther disease

Body system
Inborn errors of metabolism
Inheritance pattern
Autosomal recessive
Typical age of onset
All ages
Estimated prevalence
<1 / 1 000 000 (Europe)
Rarity class
<1 / 1 000 000

ORPHA:79277 is classified under "Inborn errors of metabolism" in the Orphanet nomenclature.

Common signs

  • Severe photosensitivity
  • Abnormal blistering of the skin
  • Fragile skin
  • Increased erythrocyte protoporphyrin concentration
  • Abnormal circulating porphyrin concentration
  • Increased urinary porphobilinogen