Rare Zebra

Rare disease search prototype built on Orphanet data

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ORPHA:794

Saethre-Chotzen syndrome

Also called ACS3, Acrocephalosyndactyly type 3, SCS

Body system
Bone diseases
Inheritance pattern
Autosomal dominant
Typical age of onset
Antenatal, Neonatal
Estimated prevalence
1-9 / 100 000 (Europe)
Rarity class
1-9 / 100 000

ORPHA:794 is classified under "Bone diseases" in the Orphanet nomenclature.

Common signs

  • Finger syndactyly
  • Facial asymmetry
  • High forehead
  • Abnormal skull morphology
  • Craniosynostosis
  • Clinodactyly of the 5th finger